If I Get Dementia

affordable home care companies assisted home care in Minnesota at home caregivers care for older people companion home care services for seniors elder care in MinnesotaI ran across this list today and thought I’d share it with you. It was written by Rachael Wonderlin, who has her master’s degree in gerontology and works at a dementia care community in North Carolina. It appears on her Dementia By Day blog and was originally published for the Alzheimer’s Reading Room. I thought our readers who are taking care of elderly parents with dementia would appreciate her insight.

Racheal says, “In case I get dementia, I’ve written a list of rules I’d like to live by. I’d like my family to hang this wish list up on the wall where I live.” Her suggestions are spot on! How many of these suggestions did you know about?

 

  1. If I get dementia, I want my friends to embrace my reality. If I think my spouse is still alive, or if I think we’re visiting my parents for dinner, let me believe those things. I’ll be much happier for it.
  1. If I get dementia, I don’t want to be treated like a child. Talk to me like the adult that I am.
  1. If I get dementia, I still want to enjoy the things that I’ve always enjoyed. Help me find a way to exercise, read, and visit with friends.
  1. If I get dementia, ask me to tell you a story from my past.
  1. If I get dementia, and I become agitated, take the time to figure out what is bothering me.
  1. If I get dementia, treat me the way that you would want to be treated.
  1. If I get dementia, make sure there are plenty of snacks for me. Even now if I don’t eat, I get angry! If I have dementia, I may have trouble explaining what I need.
  1. If I get dementia, don’t talk about me as if I’m not in the room.elderly home care service home care services for seniors citizen care home help for the elderly home assitance respite for caregivers non medical senior care taking care of elderl parents
  1. If I get dementia, don’t feel guilty if you cannot care for me 24 hours a day, 7 days a week. It’s not your fault! You’ve done your best. Find someone who can help you, or choose a great new place for me to live.
  1. If I get dementia and I live in a dementia care community, please visit me often.
  1. If I get dementia, don’t act frustrated if I mix up names, events, or places. Take a deep breath. It’s not my fault.
  1. If I get dementia, make sure I always have my favorite music playing within earshot.
  1. If I get dementia and I like to pick up items and carry them around, help me return those items to their original places.
  1. If I get dementia, don’t exclude me from parties and family gatherings.
  1. If I get dementia, know that I still like receiving hugs or handshakes.
  1. If I get dementia, remember that I am still the person you know and love.

Julie Ellingson, LSW

March 11, 2016

 

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